Showing posts with label Lyme Disease. Show all posts
Showing posts with label Lyme Disease. Show all posts

Wednesday, February 16, 2011

Great Things

I was thinking about next year and how I don't have any idea where I'm headed in May.  I've sent MFA applications to five schools around the country.  The closest to home is six hours away.  The closest to here is five hours away.  Of all five schools, the one with the closest family friends is three hours, my friend Rebecca's extended family.

I began to think about Rebecca's little sister Kaitlyn who's finally on the uphill climb in her horrific battle with Lyme Disease.  She has miraculously regained mobility but remains hyper-sensitive to touch, sound, light, smells, etc.  She's made huge steps (no pun intended) but has a long way to go.

Katie: God, You've given her such a great testimony of spiritual strength through physical weakness.  You're going to do such great things with Kait!  I'm so excited to see it!
God: Actually, Katie, I'm not going to wait until she's healed to do great things with her.  I'm doing great things with her right now.  I'm using her as she is, where she is.

I began to think about how God can and is doing the same things in each of our lives.  He's not waiting until we're healed, until we're in a middle-of-nowhere grad school, until we're all put together.

He is using us right now, where we are, as we are.

Being used,
<>< Katie

PS: For more about Kaitlyn's story, check out her caringbridge.  You do have to register for the site but it's open to anyone with a (free) CaringBridge account.

Wednesday, September 29, 2010

Ten Steps

What did you do thirteen days ago?  At some point during the day did you walk to your living room and sit down on the couch?  For the first time in two years, so did my friend Kaitlyn.

In October 2007, Kaitlyn was sent home from school sick.  At first they thought she had the flu, but she got worse rather than better, and no one knew why.  Her hyper-sensitivity to sound, touch, smell, light, etc. left her to sit in a dark room all day watching tv and the lowest possible volume level.  Her family read the subtitles because the tv was too quiet to hear. 

In April 2008, she lost the ability to walk.  That June she was finally diagnosed with Lyme Disease and multiple co-infections.  Her family of five (plus two dogs) packed up their lives, left their 3,800 square foot house, and moved 800 miles to a two-bedroom apartment.

Over the last few years they have faithfully walked through a battle that I cannot fathom.  The air conditioner, the act of cooking dinner, and even the gurling of the fridge are painfully loud to her.  Hugs are out of the question.  She's been treated almost daily at same clinic since 2008 and the doctor and nurses have never seen her face because she wears a towel over her head to block the light. 

The week before the Steelers (this family's football team of choice) won the Superbowl, Kaitlyn independently walked ten steps, something medicine could not explain.  That ability was lost again but the hope it provided was remarkable.  She's now learning to walk again, and less than two weeks ago she got to sit in the living room for the first time since they've lived there.

This week, on September 29, Kaitlyn turns sixteen.  What did you do for your sixteenth birthday?  Not sit around in a dark apartment or go to a clinic with a towel over your head, right? 

For her 14th birthday, their apartment was flooded with cards. 
For her 15th, we were asked to fast and petition the Lord, the Great Physician, for her healing. 
This year, her family has asked that we find a way to make her 16th birthday memorable. 

What they want everyone to do is something sweet or uplifting. Something out of the ordinary.  They suggested volunteering at a soup kitchen, making a meal for someone, visiting hospice, writing to a solider, volunteering at a dog shelter... Bless someone on her behalf.  In Kaitlyn's honor and for God's glory.

I would love for you to participate with us.  If you do, please comment on this post or send me an email with what was done and where it was, your state if you're within the US or your country (since I know there are some international lurkers!).  What they're going to do is collect these stories and bind them into a keepsake book for Kaitlyn.

“Therefore, we do not lose heart.  Though outwardly we are wasting away, yet inwardly we are being renewed day by day.  For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.  So we fix our eyes not on what is seen, but on what is unseen.  For what is seen is temporary, but what is unseen is eternal.” 2 Corinthians 4:15-18

As for what I did, well, you'll have to come back on Friday.
<>< Katie

PS: For more information, visit her caringbridge.  You do have to register for the site but it's free and open to everyone.

Friday, April 9, 2010

Happy birthday, Rebecca

"How's your family?"  I asked Rebecca over dinner a few months back.  I already knew the answer thanks to the sporadic caringbridge updates, but it would have been ruder of me not to ask.

"They're having a grand time in their little tiny apartment," she told me, her Pennsylvania accent not nearly as thick as her mother's.  Mrs. Karen and I used to tease about the desire to sit for hours and listen to the other talk just to hear our different accents.  Mine's not as strong as it used to be, a repercussion of living in the south nine months out of the year, but it's still there to be a frequent source of mocking.  Rebecca's accent has faded, too, I noticed as she went on to tell me about her family of five (plus two dogs) living in a two-bedroom, two-bathroom apartment with a hyper-sensitive (no light, sound, touch, etc.) sister battling Lyme disease.  If Rebecca wanted to talk Lyme, I was more than willing to discuss it with her, but a year and a half after diagnosis who really wants to keep repeating the horrors of the debilitating disease?  That's what caringbridge is for.  Dinners are for reminiscing with old friends, and that's exactly what we did.  We retold our favorite stories about growing up together, the three years we were neighbors.

"Remember when we had a four-bedroom cardboard house in your basement?"
"The one we used seven rolls of duct tape to build? Yes!"

It's so funny to hear the different memories we both share in addition to the ones the other has forgotten.  Sometimes I think these stories are better than the ones we both remember.  I'd forgotten about the time we "flew" into her basement by climbing through the window.  She'd forgotten about our "synchronized swimming routine" in my pool.  Of course, neither one of us has forgotten the "pump up the new born baby," the restaurant in her basement, or playing hide and go seek.  One set of parents would laid down some rules and the other would obey them.  Even grandparents knew we had to be home for dinner at 5:30, and after dinner we could play again until the neighborhood lights came on.  Those were the rules and we accepted them.

When sharing my testimony I always say Rebecca was placed in my life to provide me when a friend during the challenges of middle school.  Really, I believe that to be true but I also believe Rebecca and her family were placed in my life to show me what it's like to live as a Christian.  To show me selflessness, hope, discipline, and love.  Even now, when I get emails about their medical fight, every update ends with a scripture, hope-filled song lyrics, or a prayer.

Living in different parts of the country now (between the two of us, we could claim residency in six different states) makes it hard to get together and share life on a regular basis.  Prior to our dinner last month, it had been three years since I'd seen her.  Even though I wasn't feeling well enough to actually enjoy eating dinner, I thoroughly enjoyed our dinner conversation.  We picked up exactly where we left off, as friends and sisters in Christ.

All this to say, happy birthday, Rebecca; thank you for the joy, hope, and love you've brought into my life.  One day I will watch you play basketball; I hope it's in a WMBA game.

<>< Katie

Sunday, January 3, 2010

Daily Mullings

I don't know what to write about today. I wrote a blog about smashing glass against the fire place, and I'm proud it as a writer but it doesn't have a point. I might post it anyway. I've toyed with the idea of explaining why my sister has two fish named Earwax but I think that's a "you had to be there" story and no quality of writing will do it justice. I could blog about Lyme disease since that's something that's become close to my heart and my aunt and uncle's dog was just diagnosed with it (missed by the first vet, big surprise there...). Or I could make reading this blog worth your time unlike the book I'm reading right now.

As of yesterday when I went to the bookstore, I am currently reading The Condition by Jennifer Haigh. Supposedly it's about a woman with Turner's Syndrome, a disease I did a case study on in 9th grade. Well, I'm 126 pages into it and I'm not quite sure what it's about. Way too many details about too many people. I understand explaining the lives of the five people in the family since they are all adults, but the lives of every person each individual has ever met is a little bit of overkill. Why am I reading this? I don't want you to ask the same about my blog. That is, assuming you're still reading. Is there anyone but Melissa here?

Oh! Storytime!
Since the story involves Bob you have to hear me like Bob hears everything I say: supersonic speed in a pitch so high only dogs can understand (I've been frequently told I'm "Telemundo in English").

A few weeks ago, I was the only attendee of HIGH SCHOOL Bible study. This isn't the first time this has happened, but in all previous instances I was still, well, the target audience. This particular week Bob had been prepared to teach on messianic prophesies as found in Zechariah (that's means everything in Zechariah the predicted Christ's coming). It was time to start and Bob looked around the room, "There's no one here," he announced.

"Am I no one?" I retorted.

"You know what meant," he said with a smile. Of course I did. I've only known Bob for seven years; that's enough time to know anyone's quirks (trust me, we both have plenty).

The two of us took a big step in our relationship and sat at the same bar table to investigate these passages. Even with both of our brains put together we could not wrap our minds around some of these passages. "But how does this predict Christ's coming?" "Are they talking about Christ here or not?" "Why do we insist this is Christ? This part came to fruition but not the rest of this." "What does this mean?" "The study Bible said THAT?"

Yeah, not a very educational but incredibly challenging. It was relaxing to wrestle with these ideas without a facade. Without either one of us needing the answers. Both of us were willing to admit we didn't understand.

"Maybe it's a good thing no one came today," he said at the end of our time.
"I came."
"That's what I mean. You're probably the only one who's ok leaving with more questions than answers," he said and paused. "I feel like a failure."
"You're not," I assured him. He was right: I was ok leaving with more questions than answers.
"I'm a failure. You're a failure," he said with a laugh. Thanks for the support, Bob. :-)

Learn to be ok with questions. They don't all need to be answered but that should not stop you from asking them.

What does this mean?
<>< Katie

Monday, December 28, 2009

Chilling Conversation

I wrote one of these awhile ago and everyone begged me to do another one. Well, they're incredibly difficult to write because they're very personal. This was yesterday morning when I returned to me seat following communion. I bowed my head and was hit in the face.
<>< Katie
Katie
God

Oh my gosh it's frigid in here! It's Christmastime; why is the air conditioner still on?
Hey, you're the smart one that sat in the same seat twice in one week. Didn't you learn on Christmas Eve?
I feel like I'm sitting in a wind tunnel!
At least you can feel.
Not helping.
I'm serious. Your friend with Lyme disease's body doesn't control temperature correctly. Yours does.
But I'm always cold. I'm already wearing a sweater and long pants. I can't put much more on.
You have a coat.
Then it won't do me an good when I go outside. Have You noticed it's 16 degrees outside, Mr. I Control the Weather?
I have noticed.
Did You also notice I don't have any gloves?
You have gloves.
No, I don't! They're at home in the dryer because they were germy. What a day to wash my gloves!
That's My point. You have gloves... a plethora of gloves. A red pair in your peacoat, a blue pair that belong in Wonder Jacket but are in the dryer right now, a purple pair for texting, a black pair for skiing... Katie, you even have a pair of gloves you wear around the house.
But my hands are still chapped and cracked. All of those gloves aren't doing me any good right now!
But you have gloves. Remember the mitten tree in the atrium? Those kids are getting their one and only pair of gloves.
The mitten tree! That's a good idea! Maybe I'll borrow a pair for the day.
I can turn up the AC if you'd like.
No, thanks. Heat would be nice right about now.
Not until you realize what you do have... a working body--
Minus the spontaneous bleeding of my hands.
You have gloves, your choice of jackets, and think about all of the miscellaneous items stored in Wonder Jacket.
There aren't any gloves in Wonder Jacket right now, I already looked.
No, they're not home being washed. Not because they were dirty but because you think they're full of germs.
They were!
Do you used the washing machine, which you have.
Having a washing machine isn't preventing me from turning into an ice cube right now. You know those cartoons were people are frozen in solid blocks of ice? That's what going to happen here today.
No, it won't. I'll make sure it doesn't happen, but I want you to forget about being cold and just listen. I know that's hard for you but try. For Me?
Ok... fine...

Monday, September 29, 2008

Happy birthday, Kaitlyn!

Today is Kaitlyn's birthday. Unfortunately, she's not having a very happy one. Her birthday consists of the daily trip to the clinic for treatment followed by the necessity of eating despite the nausea. That's not to mention the light, noise, and touch sensitivity.

Kaitlyn's my sisters' friend that I haven't seen in four years. Were she in any other condition, today would go on as normal. Instead, it's causing me to pause and reflect and find a good Kaitlyn story. I could tell countless stories about her big sister. Several about her family in general, but Kaitlyn? There's the memory of crouching in the closet listening to her pace the hallway calling my name during an intense game of "Hide and Seek". Or the time we were in the basement for the tornado warning with their grandma.

A different story comes to mind and causes me to feel guilty. I usually wasn't the girl who made fun of other kids, but one afternoon I made fun of one of Kaitlyn's friends for being a little different. Kait's sister totally called me out on it.

"It's not her fault she has a speech impairment."

Ouch. I was caught up in the physical attributes of this girl and missed who was hiding behind her crimped blond hair. Kaitlyn was able to look beyond that and see a good friend. Let's learn from Kait's love and Katie's mistake! :-)

In Christ,
<>< Katie

(This was supposed to be posted yesterday... oops)

Tuesday, August 19, 2008

Thank for the Noise

Yesterday was my first day to sleep in since the 9th and I took a full opportunity to do it! It would have worked a whole lot better if it weren't move-in day for returning students. Yeah, the brilliant architects who made this building forgot about insulation. I'm not kidding. There are some bullet-sized holes in the wall where we can literally see through into our neighbors' room. So, yesterday I awoke to the banging of desks against the wall, the slamming of drawers, and the building of bunk beds. What a perfect way to start the day. :-)

As luck would have it, I ended the day in the exact same fashion. As I lay there in bed praying midnight would come and visitation hours would end for their male friends with big booming voices would be forced to return home, the air conditioner turned on. That was all God needed to do to get my attention.

You see, my friend Kaitlyn (who I blogged about a few weeks ago) is so sensitive that she can't tolerate ANY noise. The noise of the air conditioner is too loud.

Thank You, God, that I can tolerate a certain level of noise.

Thank You God for the ability to hear.
Even if I'm unintentionally eves dropping.

Take a minute and thank God for those things you often overlook or become annoyed with. The gurgling fridge. The ability to smell, even if it is the garbage. The ability to see, even if you see more than you want to. The ability to touch, too bad you got your fingers stuck together with glue. The ability to talk, even when those crude four-letter words slip out.

<>< Katie

"Pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus." 1 Thessalonians 5:17-18

Monday, July 28, 2008

God Speaking

Comments make my day. :-) I'm glad you like the song references. I'm sure there are more to come.

I wrote a blog during work today but wasn't pleased with it, so I saved it and decided to finish it later. It was talking about how all morning on Sunday I had different songs from Casting Crowns' Altar and the Door CD rotating through my head. I finally got them to go away and they sang "Everyman" in church. Annoying? Yes.

I then came home today and learned one of our family friends is in the hospital with a life threatening illness. She's younger than my youngest sister, and she's been really sick for several months. They finally have a diagnosis, but treatment will require multiple months stay in an out-of-state hospital. Prayers are much appreciated! I was texting my friend (her older sister) not really listening to my iPod as it played on shuffle in the background. Our conversation ended and I realized the song that was playing is on that I consider "her song." Of the 2,869 songs on my iPod, playing today was one of the two songs she gave me when they moved away. Perfectly planned? Of course.

I got an email update about her sister a few hours later in which she shared this story that went right along with this theme. She was driving yesterday with Casting Crowns Lifesong CD playing. She said it was a bright and sunny day when "Praise You In This Storm" came on. By the time the song hit to the chorus, rain drops were falling. When the song finished, so did the rain. Coincidence? Not with God.

In the words of Mandisa, "Who knows how He'll get a hold you. Get our attention to prove He is enough. He'll do and He'll use whatever He wants to, to tell us: 'I love you.'"

In Christ,
<><>

"Praise the Lord, O my soul; all my inmost being, praise His Holy Name...Who forgives all your sings and heals all your diseases." Psalm 103:1,3